March is National Colorectal Cancer Awareness Month, which aims to highlight the importance of early detection and screening starting at the age 45. Although colorectal cancer is the second deadliest cancer in the US, it is one of the few cancers that is preventable with screening. I had my first colonoscopy at 39… one in… Continue reading Colonoscopies for Early Detection and Screening

There are so many ostomy hacks, tips and tricks people pick up while living with an ostomy. The following 5 tips are some of my favorite hacks!

We’ve been traveling a great deal recently in comparison to the almost zero travel we did during the pandemic. We’re getting out! And now that springtime is nearing, the endless wide open schedule of summer is calling us. Every July we fly to Colorado. We drove once and once was enough. I will never get… Continue reading Which Pilot Are You?

Common health issues in adults with Spina Bifida are stunt failure, high blood pressure, latex allergy, lung health, and...

Disability is not a burden, and ableism is not heroic. I recently saw a meme on Instagram that depicted two people holding hands – one in a wheelchair and the other standing. Over the person standing it reads “not a hero” and over the wheelchair user it says “not a burden”. It got me thinking,… Continue reading Disability and Relationships

If your child is unable to meet their nutritional needs by mouth, a feeding tube provides a way to obtain life-sustaining nutrients. This method of “eating” bypasses the mouth and esophagus and delivers nutrition directly into the stomach or small intestine. Tube feeding is a tool that allows your child to thrive. It’s common and… Continue reading Adjusting to Tube Feeding Your Child At Home