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This is What It Means to Have a Rare Disease

It took my son 15 months to his diagnosis for his first rare disease...His Primary Immunodeficiency wasn’t diagnosed until he was 11.

Alethea Mshar
ADHD

Parenting a Child with ADHD

As a parent of a child with ADHD...You are constantly surveying the environment and trying to accommodate your child so that he can perform at his best.

Dr. Liz Matheis

Children Who Need Medical Equipment Often Wait Months or Years

This article explores the maze of requirements that families of children with disabling health conditions must go through to obtain medical equipment.

Brooke Phillips, CWCMS
spoons

Measuring Life by the Spoonful

The Spoon Theory: When living with a disability or caring for someone who is, you may find yourself thinking about how you conserve/spend energy (spoons).

Jamie Sumner
Doctor

10 Years Ago My Son’s Doctor Gave Me a Challenge

I can’t wait to look Doctor C in the eye and thank him for issuing that challenge so long ago, to tell him I never stopped trying, and to show him how far we have come.

Alethea Mshar
children

3 Ways to Connect With Our Children

If you are a parent of a child or children with special needs, I know how tired you are at the end of each day. Finding time to connect with your kids each day is tough.

Dr. Liz Matheis
Respiro

4 Tips: Making the Most of Respite Care

No one is going to take care of your child like you do. But if you want to keep doing that great job, you need to step away. Learn how to make the most of respite care.

Jamie Sumner
empathy vs. sympathy

Empathy vs. Sympathy, How to Listen to Someone’s Pain

There is nothing greater in my life than finding someone who has mastered the art of Empathy. Someone who listenss without interrupting, focuses on the speaker, or can admit they don’t know what to say.

Alethea Mshar

How Can a Lost Dog Be Easier to Find Than a Lost Child?

Why is it easier to find a lost pet than a child? As children grow to be more indepenendent, sometimes they wander off, and they don't have chips like dogs.

Jamie Sumner
talking to children about current events, sexuality

How to Best Support Your Child with a Learning Disability

As a parent, we’re often troubleshooting challenges as they happen. To help streamline your next steps, we spoke with Dr. Liz Matheis who specializes in assisting children and their families with Autism, ADHD, Anxiety and learning/behavioral disorders.

Sarah Sanchez, NDTR
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