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ENFit Enteral Connectors

The New ENFit Enteral Connectors for Feeding Tubes and More

Read our most recent article about ENFit by clicking here. By now, you have likely heard about the new ENFit Enteral Connectors and the revised timeline released by the Global Enteral Device Supplier Association (GEDSA). The GROW community wants to make sure that all parents of tube-fed children are aware of the changes that are on… Continue reading The New ENFit Enteral Connectors for Feeding Tubes and More

Amy Long Carrera, MS, RD, CNSC, CWCMS
tube-fed child

Caring for a Tube-Fed Child: Top Ten Emotional Issues

Parents of a tube-fed child report that the social/emotional issues they deal with daily can be more taxing  than the medical complications of tube feeding.

Amy Long Carrera, MS, RD, CNSC, CWCMS
Music Therapy for children with Special Needs

Music Therapy for Children with Special Needs

Music therapy for children with special needs works because, children are drawn to music, whether it's a song from their favorite artist, or a soundtrack

Julian Perez
Pediatric Hospital Rankings

Congratulations to the U.S. News Best Children’s Hospitals 2015-16

Wishing a congratulations to all the best children's hospitals that made it into the top twelve Honor Roll list named by U.S. News and World Reports.

Aimee Sharp
Helpful links and resources

GROW Community Helpful Links and Resources

Helpful links and resources for families of children with special needs.

Aimee Sharp
Via Stateline

Lawmakers Look To Improve Care For Kids With Complex Needs

By Christine Vestal, Stateline, featured in Disability Scoop Finding care for children with medically complex or rare conditions can force parents to tap into networks of highly specialized physicians and hospitals scattered around the country. This is especially challenging when the children are covered by Medicaid, because each state-run program has a different benefit package,… Continue reading Lawmakers Look To Improve Care For Kids With Complex Needs

Aimee Sharp
Tube Feeding Your Child at Home

Tips for Adjusting to Tube Feeding Your Child at Home

Tube feeding your child at home may take some getting used to but you will get the hang of it with support from family, friends and your healthcare team.

Amy Long Carrera, MS, RD, CNSC, CWCMS
Feeding Tube

Skin Care and Your Feeding Tube

The skin around your child's feeding tube requires extra attention. Protect this area, called the stoma site, with daily care and monitoring.

Amy Long Carrera, MS, RD, CNSC, CWCMS
Shield HealthCare Caregiver Story Contest 2013 Runner Up Tamara E.

A Mother’s Calling Revealed Through Her Daughter With Cerebral Palsy

Shield HealthCare 2013 “What Makes Caregiving Rewarding?” Story Contest | Runner-up Spotlight Congratulations to Tamara E. for her winning caregiving story! Read Tamara’s story about how she found her calling through her daughter with cerebral palsy. Tamara E.’s Story: “Caregiving as a career was the furthest thing from my mind when I was in my twenties. When… Continue reading A Mother’s Calling Revealed Through Her Daughter With Cerebral Palsy

Brooke Phillips, CWCMS
National Birth Defects Awareness Month

National Birth Defects Prevention Awareness Month

More than 120,000 babies are born with a birth defect each year in the United States. This National Birth Defects Prevention Month, learn what you can do.

Brooke Phillips, CWCMS
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