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coronavirus

How We Stave Off Panic Over the Coronavirus

The truth is, you can never be entirely prepared—the coronavirus, tornadoes, housing crises, cancer, car wrecks—they come of their own accord.

Jamie Sumner
Handwashing

Handwashing Is the Hot Trend, I Hope It Lasts

While I hope the Covid 19 outbreak quickly becomes a thing of the past, I urge us all to learn and remember the lessons of the present situation. Handwashing saves lives.

Alethea Mshar

This is What It Means to Have a Rare Disease

It took my son 15 months to his diagnosis for his first rare disease...His Primary Immunodeficiency wasn’t diagnosed until he was 11.

Alethea Mshar
ADHD

Parenting a Child with ADHD

As a parent of a child with ADHD...You are constantly surveying the environment and trying to accommodate your child so that he can perform at his best.

Dr. Liz Matheis

Children Who Need Medical Equipment Often Wait Months or Years

This article explores the maze of requirements that families of children with disabling health conditions must go through to obtain medical equipment.

Brooke Phillips, CWCMS
spoons

Measuring Life by the Spoonful

The Spoon Theory: When living with a disability or caring for someone who is, you may find yourself thinking about how you conserve/spend energy (spoons).

Jamie Sumner
Doctor

10 Years Ago My Son’s Doctor Gave Me a Challenge

I can’t wait to look Doctor C in the eye and thank him for issuing that challenge so long ago, to tell him I never stopped trying, and to show him how far we have come.

Alethea Mshar
children

3 Ways to Connect With Our Children

If you are a parent of a child or children with special needs, I know how tired you are at the end of each day. Finding time to connect with your kids each day is tough.

Dr. Liz Matheis
Respiro

4 Tips: Making the Most of Respite Care

No one is going to take care of your child like you do. But if you want to keep doing that great job, you need to step away. Learn how to make the most of respite care.

Jamie Sumner
empathy vs. sympathy

Empathy vs. Sympathy, How to Listen to Someone’s Pain

There is nothing greater in my life than finding someone who has mastered the art of Empathy. Someone who listenss without interrupting, focuses on the speaker, or can admit they don’t know what to say.

Alethea Mshar
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