I am on my couch, Googling “travel backpack-special needs-forty plus pounds.” We are - deep breath - taking a family vacation to Colorado in July.

As I watched my son get ready for prom that morning, my feelings were mixed. My son was over the moon about his big day, but I had other thoughts.

Until we began to carve out our home to make it accessible to our son with cerebral palsy, I did not know I could plan his path to freedom.

People seem to see my child’s disability first, him as a human being second. I have a desire to engender understanding on behalf of my child.

Performing any medical procedure on your child can be stressful for all concerned. Swapping out your child's g-tube for a replacement is no exception.

We hadn’t even made it to the Target toy section when he laughed and cupped his hands together to sign “more.” He was looking at an ad of a boy in a walker.

Gloria G. is from California, and was one of forty finalists chosen out of the over 1,000 entries to our “What Advice Would You Give to a Fellow Caregiver?” Contest. You can find our grand prize and runner up winners here. What advice would you give a fellow caregiver? Advice for soothing a crying medically fragile… Continue reading Caregiver Contest Finalist Gloria: Soothing Medically-Fragile Children

A special needs mom can feel invisible and exhausted -- making a special day set aside to appreciate her especially meaningful.

This taps into the fear of many caregiving parents: what if something happens to me without time to prepare? I'm finding ways to share the responsibility.

Special needs parents are perhaps the best at feeling guilt when we miss a milestone moment for our child. But it doesn't have to be that way.