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in the NICU

A Funny Thing Happened on the Way to the NICU…

These are the little bubbles of laughter and light we need when life is the hardest. That’s the thing about life - it usually sends you something when...

Jamie Sumner
What is fragile X syndrome

Xtraordinary Individuals: Learning About Fragile X Syndrome

If your child has recently been diagnosed with Fragile X, it can be overwhelming and scary. Fragile X can present a unique set of challenges for individuals and their families.

Paige Oyaga
disabled children in school shootings

YouTube Can Be Magic

For Charlie who uses a wheelchair and is mostly nonverbal, YouTube is his gateway to the world. It opens doors to other adventures...

Jamie Sumner
talking to children about current events, sexuality

Talking to Your Children About Current Events

What Should I Say? How Much Should I Say? Young children and teenagers are curious creatures. They hear and see things that they don’t always understand. They pick up on the emotions around them and can feel overwhelmed or confused.  The natural next step is for a child or teen to approach their parent. As… Continue reading Talking to Your Children About Current Events

Dr. Liz Matheis
When Mother's Day is Complicated

When Mother’s Day is Complicated

Mother’s Day is complicated for many reasons. For those of us who spent years trying to conceive, we remember that day as a celebration for what felt like the rest of the world and absolute isolation for us. For those of us who have lost a child, this day is full of mourning. For those… Continue reading When Mother’s Day is Complicated

Jamie Sumner
raising your teen with special needs

3 Tips for Raising a Teen with Special Needs

Adolescence is a time of immense physical and emotional growth, and of wanting independence. A teen with special needs is no different...

Dr. Liz Matheis
Adjust to Change

Dyslexia Assessment: A Parent Guide

I Think my Child is Dyslexic – Now What? First things first: if you suspect your child has dyslexia, consult with a professional with specialized knowledge in language development to request an assessment. A speech-language pathologist who is certified by the American Speech, Language, and Hearing Association (ASHA), and who has training in reading disorders,… Continue reading Dyslexia Assessment: A Parent Guide

Dr. Liz Matheis

Five Wheelchair-Accessible Games for Gym Class

Gym class has always been a bit of a sore spot for me. Sure, I would lace up my Keds and hike up my spandex biking shorts from the Limited Too and get out there with the rest of them. But when it came to group sports, I was never picked first, or last, but… Continue reading Five Wheelchair-Accessible Games for Gym Class

Jamie Sumner
Jamie sumner holding her son with complex medical needs

When the Caregiver Needs Medical Care

I am not the best at going to the doctor. I’m great about it with my kids. If there is vomiting, a high fever, discharge of any color, then we are there with insurance card in hand and masks on. But when it comes to me, let’s just say I’m more…wait and see. There is… Continue reading When the Caregiver Needs Medical Care

Jamie Sumner
signs of dyslexia. a young boy 8-10yrs old is sitting at a desk in his living room at home, participating in virtual learning with several classmates.

Is My Child Dyslexic?

You’ve noticed a few things about your child’s reading and writing skills. At your last parent-teacher conference, your child’s teacher may have recognized that your child is struggling with reading and writing. Your child may be making progress, but is still not reading or writing at grade level. Slowly, over the course of the school… Continue reading Is My Child Dyslexic?

Dr. Liz Matheis
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