Your Bed, Your Haven
When I think about where I spend most of my time, I can deduce it down to two places – my wheelchair or my bed. My wheelchair has been measured, designed, and tested out for my exact liking, so why shouldn’t my bed be considered in the same way?
After 6 months of in-patient care, laying in a hospital bed, I moved temporarily to a motel bed that was far from comfortable or adjustable like in my hospital room. I was propped up with pillows and rolled-up towels in an attempt to give the same therapeutic support that the hospital bed allowed. Over time, I figured out what worked best for me as I moved from different homes to different mattresses.
I have a cervical spinal cord injury rendering reduced mobility of all four of my limbs. Thus, I rest heavily in one or two positions all through the night. I have hypersensitivity in my shoulders, tailbone, ankles, and heels, so a plush and responsive air mattress that automatically adjusts to my body position throughout the night is my preference to prevent pressure sores. (I wrote a blog about pressure sores HERE)
Additionally, I prefer a bed frame with a head and footboard to combat foot drop. I wedge a pillow at the end of my bed to allow for my feet to be at a 90-degree angle while I sleep. I have also used what my wife terms as “moon boots”. The searchable name is contracture boots, however I have found them to be difficult to maneuver in and out of bed since they are very bulky. If your feet are needing stability, might I suggest using these while watching TV on the couch or chair.
Now that we have figured out the bed frame and the mattress, we need to decide on pillows. Currently, I use five every night. Each pillow has a different use, size, and firmness. They may not look aesthetically pleasing, but they all serve a purpose! I believe switching out pillows regularly helps with avoiding pressure sores and hot spots. I invest in high-quality pillows and since they are in rotation, they do not break down as quickly as daily-use lower-quality pillows, making it worth the dollar amount. When shopping for your pillows, or any bed-related items, look for longer return windows. This will ensure that you buy what works for you and that you are not out the money for something that ends up not working. In addition to the pillows, I keep a rolled-up hand towel at my bedside which I use to help keep the natural curvature of my spine. Since my injury level is C4,5,6 and I have an anterior fusion, I am mindful of allowing my neck and spine the rest and relaxation it needs.
As for sheets, my wife usually picks those! But, I prefer 100% cotton as it breathes better and can deal with night sweats easily. Cotton sheets also wash nicely if there are any accidents resulting in stains. Speaking of stains, make sure to add a waterproof mattress cover! It is far easier to change, and I would rather spend money on a new mattress pad over a new mattress.
This past January, I had the privilege of working with Sleep Number on a commercial, “Rising to the Challenge”. You can watch the video HERE.
The Sleep Number adjustable bed frame and mattress have been the finest sleep solution I have ever experienced. They have significantly improved my quality of rest, which in turn enhances my vitality, activity, and productivity throughout the day. I elaborate more on the importance of quality sleep in a blog titled “Sleeping With A Spinal Cord Injury.” You can read it HERE.
I am well aware of the luxury, and the retail price tag of a hospital bed, or high-end mattress, so an alternative is simply an adjustable bed frame, which is a fraction of the cost of a Sleep Number and can offer many of the same benefits. Check out your local resell online site or even a floor model from a mattress store!
My advice is to invest in your sanctuary, in your “zen zone” and in a mattress that meets your needs. Your body and mind will thank you.
Rest well, friends.
Aaron
I have progressive MS and I find it hard sometimes to have a positive attitude. How do you reach out to others?
