While all parents celebrate their children’s milestones and major life events, parents of children with special needs also celebrate inchstones - those tiny little milestones no bigger than an inch but every bit as significant.

You can’t “mess up” an IEP meeting. Whether you leave feeling fully satisfied in the outcome or not, remember, this is an ongoing discussion.

This March, Charlie turns eight...And it’s only appropriate that it happens during Cerebral Palsy Awareness Month, the month in which we celebrate all the Charlie has overcome and will continue to overcome.

The Spoon Theory: When living with a disability or caring for someone who is, you may find yourself thinking about how you conserve/spend energy (spoons).

I can’t wait to look Doctor C in the eye and thank him for issuing that challenge so long ago, to tell him I never stopped trying, and to show him how far we have come.

No one is going to take care of your child like you do. But if you want to keep doing that great job, you need to step away. Learn how to make the most of respite care.

The history of jazz has taught this mom about adaptaion, improvisation and leaning into opportunities that seem like mistakes.

Radical acceptance of my child changed everything, but mostly it changed me. When Alex, now 17, was born I had a dirty little secret that I didn’t even realize was dirty. My plan was to make sure he was “high-functioning”. When the OT, SLP and Early Childhood Teachers visited for his Early Intervention, I busted… Continue reading Radical Acceptance of My Child Changed Everything

When it comes to celebrating the holidays, my children deserve a safe, fun, and relaxed season, and that means home sweet home.

You may feel out of control right now, but keep in mind that your experience as a parent is very much influenced by your perceptions of parenting and your experience of being parented.