While all parents celebrate their children’s milestones and major life events, parents of children with special needs also celebrate inchstones - those tiny little milestones no bigger than an inch but every bit as significant.
Wheelchair costumes! In the spirit of fashion for all abilities, I’m sharing a few easy ideas for Halloween costumes that can be adapted for wheelchairs.
I have two sons and have met dozens of people with Down syndrome. The one thing I know to be true about all people with Down syndrome is this.
As parent and primary caregiver of a complex child, you know your child best. Trust your gut and question the professionals when you need to.
As parents of a child with special needs, we all know it. That fear we all fear when our support system fails and we are parenting alone.
For my family, balance is not a reasonable aspiration. Instead I’ll seek to triumph in the highs and rebound from the lows of this teeter totter life.
The birds and the bees …oh geez, do we really have to go there? Yes, we do. Our children with special needs are still kids who are hungry for information.
To be independent is a hard-wrought thing. Eating, breathing, speaking, moving…these things take intense effort from a child and family with special needs.
There’s something to be said for developing your “surprise face” when someone tells you she’s pregnant. As a special needs mom, there's some PTSD involved.
When it hit us, it hit hard and fast. I don’t know if there’s an actual name for it, but I call it therapy burnout. We called it quits for a year.