Tag Archive: complex medical needs

Every Inchstone is Worth Celebrating

While all parents celebrate their children’s milestones and major life events, parents of children with special needs also celebrate inchstones - those tiny little milestones no bigger than an inch but every bit as significant.

Sarah Sanchez, NDTR
wheelchair costumes

Wheelchair Costumes: Halloween Ideas for Kids with Wheels

Wheelchair costumes! In the spirit of fashion for all abilities, I’m sharing a few easy ideas for Halloween costumes that can be adapted for wheelchairs.

Jamie Sumner
down syndrome

The One Thing That’s True About Every Person with Down Syndrome

I have two sons and have met dozens of people with Down syndrome. The one thing I know to be true about all people with Down syndrome is this.

Aimee Sharp
complex child

Learning to Trust My Gut as the Parent of a Complex Child

As parent and primary caregiver of a complex child, you know your child best. Trust your gut and question the professionals when you need to.

Aimee Sharp
support system

Special Needs Parenting: When Your Support System Fails

As parents of a child with special needs, we all know it. That fear we all fear when our support system fails and we are parenting alone.

Jamie Sumner
balance

Instead of A Balance Beam, We Got A Teeter Totter

For my family, balance is not a reasonable aspiration. Instead I’ll seek to triumph in the highs and rebound from the lows of this teeter totter life.

Aimee Sharp
the birds and the bees

How to Talk to Your Special Needs Child about the Birds and the Bees

The birds and the bees …oh geez, do we really have to go there? Yes, we do. Our children with special needs are still kids who are hungry for information.

Dr. Liz Matheis
independence

Redefining Independence for Your Child with Special Needs

To be independent is a hard-wrought thing. Eating, breathing, speaking, moving…these things take intense effort from a child and family with special needs.

Jamie Sumner
special needs mom

Moms of Children with Special Needs: When Your Friend is Expecting

There’s something to be said for developing your “surprise face” when someone tells you she’s pregnant. As a special needs mom, there's some PTSD involved.

Jamie Sumner
therapy

Children with Special Needs and Therapy Burnout

When it hit us, it hit hard and fast. I don’t know if there’s an actual name for it, but I call it therapy burnout. We called it quits for a year.

Aimee Sharp
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