My husband's request for a Father's Day gift surprised me...until I stopped and thought about all he does for our child with cerebral palsy.
Happy Father’s Day to the father of my child with special needs. Our vows had the "in sickness and in health" part - and it wound up applying to our child.
Until we began to carve out our home to make it accessible to our son with cerebral palsy, I did not know I could plan his path to freedom.
We hadn’t even made it to the Target toy section when he laughed and cupped his hands together to sign “more.” He was looking at an ad of a boy in a walker.
Gloria G. is from California, and was one of forty finalists chosen out of the over 1,000 entries to our “What Advice Would You Give to a Fellow Caregiver?” Contest. You can find our grand prize and runner up winners here. What advice would you give a fellow caregiver? Advice for soothing a crying medically fragile… Continue reading Caregiver Contest Finalist Gloria: Soothing Medically-Fragile Children
This taps into the fear of many caregiving parents: what if something happens to me without time to prepare? I'm finding ways to share the responsibility.
More genetic testing? No thanks, I said. We did not need new paths to wander down. We needed to help our son navigate the one he was already on.
My child with special needs is neither regressing nor making leaps and bounds. Here's why I'm OK with that. I’m happy in the middle.
Our awareness is year-round, but Cerebral Palsy Awareness Month is important. Here's what I wish everyone knew about my son with cerebral palsy.
Most of us naturally filter various stimuli without a thought, but to those with sensory processing disorder, they get caught in a traffic jam of senses.