Tag Archive: complex medical needs

Father's Day

Why My Husband Was at the Spa on Father’s Day

My husband's request for a Father's Day gift surprised me...until I stopped and thought about all he does for our child with cerebral palsy.

Jamie Sumner
father's day

For Dads of Children with Special Needs on Father’s Day

Happy Father’s Day to the father of my child with special needs. Our vows had the "in sickness and in health" part - and it wound up applying to our child.

Aimee Sharp
cerebral palsy

Renovating Our Home and Our Lives for Cerebral Palsy

Until we began to carve out our home to make it accessible to our son with cerebral palsy, I did not know I could plan his path to freedom.

Jamie Sumner
Target

Target Redefines Beauty for Kids with Special Needs

We hadn’t even made it to the Target toy section when he laughed and cupped his hands together to sign “more.” He was looking at an ad of a boy in a walker.

Jamie Sumner
soothing

Caregiver Contest Finalist Gloria: Soothing Medically-Fragile Children

Gloria G. is from California, and was one of forty finalists chosen out of the over 1,000 entries to our “What Advice Would You Give to a Fellow Caregiver?” Contest. You can find our grand prize and runner up winners here. What advice would you give a fellow caregiver? Advice for soothing a crying medically fragile… Continue reading Caregiver Contest Finalist Gloria: Soothing Medically-Fragile Children

Aimee Sharp
caregiving

Caregiving as a Parent of Special Needs Children

This taps into the fear of many caregiving parents: what if something happens to me without time to prepare? I'm finding ways to share the responsibility.

Aimee Sharp
genetic testing

Why I Said “No” to More Genetic Testing for My Child

More genetic testing? No thanks, I said. We did not need new paths to wander down. We needed to help our son navigate the one he was already on.

Jamie Sumner
child with special needs

My Child with Special Needs is Neither Better Nor Worse and That’s OK

My child with special needs is neither regressing nor making leaps and bounds. Here's why I'm OK with that. I’m happy in the middle.

Jamie Sumner
Cerebral Palsy Awareness Month

What I Wish You Knew about My Son for Cerebral Palsy Awareness Month

Our awareness is year-round, but Cerebral Palsy Awareness Month is important. Here's what I wish everyone knew about my son with cerebral palsy.

Jamie Sumner
sensory processing disorder

Here’s What a Sensory Processing Disorder Really Looks Like

Most of us naturally filter various stimuli without a thought, but to those with sensory processing disorder, they get caught in a traffic jam of senses.

Jamie Sumner
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