Tag Archive: complex medical needs

parents of special needs children

Parents of Children with Special Needs: Cultivate Your Joy

For parents of special needs children, joy isn’t going to sneak up on you and invite itself into your day, you have to be intentional about cultivating it.

Aimee Sharp
dads of special needs children

Resources for Dads of Children with Special Needs

Dads of special needs children experience their own unique set of challenges. During Men's Health Month and always, they deserve recognition and support!

Amy Long Carrera, MS, RD, CNSC, CWCMS
child care

Child Care for Children with Complex Needs: No Rest for the Weary

Child care isn't easy for parents of children with complex needs. It's hard to find people who are willing and able to help.

Aimee Sharp
child with disability

What Words Should We Use When We Talk About a Child With Disability?

All of a sudden, I’m hearing the term “special needs” questioned, so I did some soul-searching. What's the right way to refer to a child with disability?

Aimee Sharp
rare disease day

Rare Disease Day: Down Syndrome with Hirschsprung’s Disease

Rare Disease Day happens every year on the last day of February. As a parent to a child with two rare diseases, this day is particularly important to me.

Aimee Sharp
child with complex medical needs

My Child with Complex Medical Needs: A Day in the Life Part 1 – Video

If your child has complex medical needs, you're no stranger to the hospital. Today my son and I are spending a whole day there doing medical testing.

Aimee Sharp
Super Parents

Super Parents of Children with Special Needs

Super parents of special needs children are resilient, resourceful, resolute and steadfast. Most days it's enough, but some days it's not even close.

Aimee Sharp
special needs parents

The Spoon Theory for Parents of Children with Special Needs

Special needs parents may seem superhuman but they wake up each day with a limited amount of precious resources. This mom explains, using the Spoon Theory.

Aimee Sharp
special needs

What “Special Needs” Means to a Parent

"Special needs" may be a controversial term, but for parents of special needs children it denotes the supports and services their children need to thrive.

Amy Noelle Collen
complex medical needs

My Baby with Complex Medical Needs: A Mom’s Story

If your baby is born with complex medical needs, you’re not alone. There are other parents going through something similar. One mother tells her story.

Amy Long Carrera, MS, RD, CNSC, CWCMS
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