Tag Archive: developmental disability

Every Inchstone is Worth Celebrating

While all parents celebrate their children’s milestones and major life events, parents of children with special needs also celebrate inchstones - those tiny little milestones no bigger than an inch but every bit as significant.

Sarah Sanchez, NDTR
down syndrome

The One Thing That’s True About Every Person with Down Syndrome

I have two sons and have met dozens of people with Down syndrome. The one thing I know to be true about all people with Down syndrome is this.

Aimee Sharp
disabled

What Autumn and Cooler Weather Mean for My Disabled Son

When I think of autumn and what the cooler weather means for my disabled son, I worry about what might go wrong. But his adaptability never ceases to amaze.

Jamie Sumner
complex child

Learning to Trust My Gut as the Parent of a Complex Child

As parent and primary caregiver of a complex child, you know your child best. Trust your gut and question the professionals when you need to.

Aimee Sharp
support system

Special Needs Parenting: When Your Support System Fails

As parents of a child with special needs, we all know it. That fear we all fear when our support system fails and we are parenting alone.

Jamie Sumner
balance

Instead of A Balance Beam, We Got A Teeter Totter

For my family, balance is not a reasonable aspiration. Instead I’ll seek to triumph in the highs and rebound from the lows of this teeter totter life.

Aimee Sharp
the birds and the bees

How to Talk to Your Special Needs Child about the Birds and the Bees

The birds and the bees …oh geez, do we really have to go there? Yes, we do. Our children with special needs are still kids who are hungry for information.

Dr. Liz Matheis
social story

Special Needs Parenting: What is A Social Story and How Can I Get One?

A good social story helps us teach our two sons with Down syndrome many of the social nuances that don’t come easily to them.

Aimee Sharp
developmental age

Developmental Age: My Child is More than a Number

I'm not the only parent who's fought back tears after a developmental age eval. Learning my son is on level with a 3 year-old was a sucker punch to the gut.

Aimee Sharp
therapy

Children with Special Needs and Therapy Burnout

When it hit us, it hit hard and fast. I don’t know if there’s an actual name for it, but I call it therapy burnout. We called it quits for a year.

Aimee Sharp
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