I can’t wait to look Doctor C in the eye and thank him for issuing that challenge so long ago, to tell him I never stopped trying, and to show him how far we have come.
Radical acceptance of my child changed everything, but mostly it changed me. When Alex, now 17, was born I had a dirty little secret that I didn’t even realize was dirty. My plan was to make sure he was “high-functioning”. When the OT, SLP and Early Childhood Teachers visited for his Early Intervention, I busted… Continue reading Radical Acceptance of My Child Changed Everything
Our Down syndrome awareness has grown up right along with our son, and it will keep on growing and changing.
Someday, maybe, the pendulum will swing back and I will find the perfect scenario that gives me the outlet I desire and the flexibility my family requires.
The biggest reason of all that we have bigger dreams for our children is simply that they have bigger dreams for themselves.
We want our son to enjoy the world, and for the world to enjoy him, and for now, we see ABA therapy as the most effective way for that to happen.
When we realized we were naturals as special needs parents, we decided to adopt a second child with Down syndrome. Read more about our process.
I have two sons and have met dozens of people with Down syndrome. The one thing I know to be true about all people with Down syndrome is this.
A good social story helps us teach our two sons with Down syndrome many of the social nuances that don’t come easily to them.
When it hit us, it hit hard and fast. I don’t know if there’s an actual name for it, but I call it therapy burnout. We called it quits for a year.