Tag Archive: down syndrome

teenager with disability

Navigating Special Needs Parenting with Older Kids: My Teenager with Disability

Alex is now a teenager with disability, and we're discussing his transition into adulthood. Once again, I feel entirely out of my league as a parent.

Aimee Sharp
IEP day

IEP (Individual Education Plan) Day: How to Prepare Video

It's IEP Day and you're stressing out. Take a deep breath and don't sweat it. With these video tips on how to prepare, you've got this.

Aimee Sharp
your child has a disability

To The Parent Who Just Found Out Your Child Has a Disability

To the parent who just found out your child has a disability, there are a few things I want to tell you that I wish I would have known all those years ago.

Aimee Sharp
down syndrome

What’s It Like to Father a Child with Down Syndrome: The Perfect Family

Sure, being a father to a child with a Down syndrome can be different, but I wouldn't change Alex for the world. I will be forever proud to be his dad.

Michael Mshar
down syndrome and autism

What it’s Like to Have a Child with Down Syndrome and Autism: Video

Down syndrome and autism could be a common dual diagnosis. Early autism screening and intervention is crucial for children with Down syndrome.

Amy Long Carrera, MS, RD, CNSC, CWCMS

When Down Syndrome and Autism Collide

While a dual diagnosis of Down syndrome and autism can be intimidating, it may help you better understand your child and identify the right therapies.

Aimee Sharp
child with disability

What Words Should We Use When We Talk About a Child With Disability?

All of a sudden, I’m hearing the term “special needs” questioned, so I did some soul-searching. What's the right way to refer to a child with disability?

Aimee Sharp
rare disease day

Rare Disease Day: Down Syndrome with Hirschsprung’s Disease

Rare Disease Day happens every year on the last day of February. As a parent to a child with two rare diseases, this day is particularly important to me.

Aimee Sharp
child with complex medical needs

My Child with Complex Medical Needs: A Day in the Life Part 1 – Video

If your child has complex medical needs, you're no stranger to the hospital. Today my son and I are spending a whole day there doing medical testing.

Aimee Sharp
Super Parents

Super Parents of Children with Special Needs

Super parents of special needs children are resilient, resourceful, resolute and steadfast. Most days it's enough, but some days it's not even close.

Aimee Sharp
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