This March, Charlie turns eight...And it’s only appropriate that it happens during Cerebral Palsy Awareness Month, the month in which we celebrate all the Charlie has overcome and will continue to overcome.
As you and your child are getting ready for the end of the school year, you are likely anxious about several things...We are all right there with you.
The truth is, you can never be entirely prepared—the coronavirus, tornadoes, housing crises, cancer, car wrecks—they come of their own accord.
While I hope the Covid 19 outbreak quickly becomes a thing of the past, I urge us all to learn and remember the lessons of the present situation. Handwashing saves lives.
It took my son 15 months to his diagnosis for his first rare disease...His Primary Immunodeficiency wasn’t diagnosed until he was 11.
As a parent of a child with ADHD...You are constantly surveying the environment and trying to accommodate your child so that he can perform at his best.
This article explores the maze of requirements that families of children with disabling health conditions must go through to obtain medical equipment.
The Spoon Theory: When living with a disability or caring for someone who is, you may find yourself thinking about how you conserve/spend energy (spoons).
I can’t wait to look Doctor C in the eye and thank him for issuing that challenge so long ago, to tell him I never stopped trying, and to show him how far we have come.
If you are a parent of a child or children with special needs, I know how tired you are at the end of each day. Finding time to connect with your kids each day is tough.