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Spinal Muscular Atrophy

Support and Resources for Spinal Muscular Atrophy

Living with spinal muscular atrophy requires knowledge, strength and support. Find resources and support for your journey here.

Sarah Sanchez, NDTR
back to school

Back to School for Your Child with Special Needs: How to Be Ready

Getting your special needs child back to school is more complicated than it is for a typical child. Use these tips to make sure your family is ready.

Alethea Mshar
Pediatric Tube Feeding Guide

Introducing Our Free Pediatric Tube Feeding Guide

We are pleased to offer our new "Pediatric Tube Feeding Guide" for free. This guide provides comprehensive information about pediatric tube feeding.

Amy Long Carrera, MS, RD, CNSC, CWCMS
sick child

Parents: Please Keep Your Sick Child at Home

Exposure to a sick child at school can be dangerous for a child with special needs. Have a backup plan for when your kids are sick.

Alethea Mshar
moving with special needs

Moving With Special Needs – Part 1: Schools

I was concerned that moving with special needs would mean losing all we'd worked for, but we were able to get what we needed for both our kids. Here’s how.

Alethea Mshar
special needs parents

10 Things That Parents of Children with Special Needs Never Take For Granted

Without any special training, special needs parents jump into this whole new world and make incredible things happen on behalf of our children.

Alethea Mshar
special needs child

Dear Sam: A Father’s Letter to His Child with Special Needs on Graduation Day

Parents, celebrate the joys and accomplishments of your special needs child with this letter from a father to his son on graduation day.

John R. Collen, PA-C
Special Needs Child

Connecting with My Child with Special Needs: Precious Moments

Much-needed moments of connection with my special needs child renew my caregiving spirit and remind me of the value of my role.

Alethea Mshar
parents of special needs children

Parents of Children with Special Needs: Cultivate Your Joy

For parents of special needs children, joy isn’t going to sneak up on you and invite itself into your day, you have to be intentional about cultivating it.

Alethea Mshar
Homeschool

Why I’m Choosing to Homeschool My Child with Special Needs

My child with special needs is graduating elementary school, and I made the decision to do something I’ve always wanted to do: homeschool.

Amy Noelle Collen
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