The term “medical complexity” is an umbrella term used to describe a wide range of medical conditions that present unique challenges and require special care on an ongoing basis. Medically complex conditions are usually rare illnesses that are functionally limiting and are sometimes life-threatening. Children with medical complexity (CMC) have multiple significant chronic health problems,… Continue reading Children with Medical Complexity

Cystic fibrosis affects the cells that produce mucus, sweat, and digestive juices. These secreted fluids are normally thin and slippery, but with CF, they become sticky and thick. This causes tubes, ducts, and passageways to 'plug up'. This most commonly affects the lungs and pancreas

The Big Move My son Charlie just turned twelve, which is amazing and wonderful! It’s also when we hit the runway at the end of our elementary school journey and board a flight to the new destination of middle school. That season of life takes up residency in our minds for a reason. It is… Continue reading How to Smoothly Transition from Elementary to Middle School

Create sensory-friendly spaces that are more comfortable and welcoming for people with autism.

We’ve been traveling a great deal recently in comparison to the almost zero travel we did during the pandemic. We’re getting out! And now that springtime is nearing, the endless wide open schedule of summer is calling us. Every July we fly to Colorado. We drove once and once was enough. I will never get… Continue reading Which Pilot Are You?

If your child is unable to meet their nutritional needs by mouth, a feeding tube provides a way to obtain life-sustaining nutrients. This method of “eating” bypasses the mouth and esophagus and delivers nutrition directly into the stomach or small intestine. Tube feeding is a tool that allows your child to thrive. It’s common and… Continue reading Adjusting to Tube Feeding Your Child At Home

Valentine’s Day in elementary school was epic. You decorated your container (mine was a Keds shoebox, because, hello, it was the 80s) in construction paper and glitter stickers. You went to Walmart or Target (because there was no Amazon) and selected the pack of cards to give your class. Then, on the big day, you… Continue reading A Different Kind of Valentine’s Day Love

From February 4th – 10th, 2024, we celebrate Feeding Tube Awareness Week. Originally hosted by the Feeding Tube Awareness Foundation, Feeding Tube Awareness Week was created to increase awareness about the lifesaving benefits that tube feeding provides. It also allows us an opportunity to provide recognition and support to families overcoming the day-to-day challenges of… Continue reading National Feeding Tube Awareness Week

National Developmental Disabilities Awareness Month is an important time to recognize and raise awareness about individuals with disabilities and their contributions to society.

It’s so easy to have many ideas and thoughts about children, teens, and young adults with ADHD. What we often label as laziness, poor motivation, and not being able to “just do it” are not those things at all. In fact, our kids with ADHD have deep, individual struggles and resulting strengths. It is a… Continue reading What ADHD is NOT