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rare disease day

Rare Disease Day: Down Syndrome with Hirschsprung’s Disease

Rare Disease Day happens every year on the last day of February. As a parent to a child with two rare diseases, this day is particularly important to me.

Alethea Mshar

Nutrition Management for Children with Developmental Disabilities Webinar Video

Join us for this free webinar on Nutrition Management for Children with Developmental Disabilities. This webinar addresses feeding issues and nutrient needs

Amy Long Carrera, MS, RD, CNSC, CWCMS
child with complex medical needs

My Child with Complex Medical Needs: A Day in the Life Part 1 – Video

If your child has complex medical needs, you're no stranger to the hospital. Today my son and I are spending a whole day there doing medical testing.

Alethea Mshar
Super Parents

Super Parents of Children with Special Needs

Super parents of special needs children are resilient, resourceful, resolute and steadfast. Most days it's enough, but some days it's not even close.

Alethea Mshar
pediatric nurses

Pediatric Nurses: The Heroes of Healthcare

Pediatric nurses are the true heroes of the healthcare industry, and are often unrecognized and underappreciated. Here's how they've touched one mom's life.

Alethea Mshar
special needs parents

The Spoon Theory for Parents of Children with Special Needs

Special needs parents may seem superhuman but they wake up each day with a limited amount of precious resources. This mom explains, using the Spoon Theory.

Alethea Mshar

Video: What It Feels like Waiting for Test Results for Your Child

Waiting for test results for your child is difficult. In this video, Alethea reveals how it feels waiting for a new diagnosis for her special needs child.

Alethea Mshar
special needs

What “Special Needs” Means to a Parent

"Special needs" may be a controversial term, but for parents of special needs children it denotes the supports and services their children need to thrive.

Amy Noelle Collen
developmental disabilities

Nutrition-Related Issues Common to Developmental Disabilities

Developmental disabilities can make it hard to meet a child's nutrition needs. Use this guide to identify some of the common nutrition-related issues.

Amy Long Carrera, MS, RD, CNSC, CWCMS
medical tests

Medical Tests: How to Prepare Your Child with Special Needs – Video

Traveling to undergo medical tests for your special needs child can be stressful. Watch how Ben’s mom plans to make the trip more enjoyable.

Alethea Mshar
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