Support Groups For Spinal Cord Injury

Aaron Baker
Spinal Cord Injury Lifestyle Specialist | Shield HealthCare
02/15/23  7:55 PM PST
Young African man in wheelchair

When You Need Group Support

In full transparency, I’ll admit, early in my recovery I was not at all interested in attending the spinal cord injury support group that was offered every Thursday at my hospital’s community center. I would often boycott the mandatory powwow of fifteen, or so, attendees made up of mostly chronically injured (5 years or more) and a hand full of newly injured patients—my neighbors in the ward. I didn’t want to hear about the struggles of life with an injury, or how to adapt to this circumstance, or that. I didn’t want to listen to a psychiatrist talk about sex and intimacy, or reveal the humiliating challenge of incontinence… Then again, I was only twenty years old, and quite rebellious at the time.

I look back now and think about the value of those groups and the priceless wisdom shared by those who had been living long and well with a spinal cord injury. I would definitely encourage my younger self to attend and listen, to observe and share, no matter my angst or insecurity.

I have since attended many groups over the years and have absorbed a ton from my peers, I even hosted my own support group for awhile at my former rehab gym. What I learned is that we can all use group support and camaraderie at times—gifting each other a shoulder to lean on, or a smile to lift spirits, or simply, some useful tips.

For me, it boils down to trust. In a group of similarly affected folks, there is an underlying empathy, an understanding of suffering and the complexities of life with physical complications. And although, I like to trust my healthcare professionals and hope they understand my needs, I know for a fact that others in my situation can give me sound life advice for my specific adversity. That is why I am such a strong proponent for the; “It takes a village” approach to life with an injury.

With that in mind, below is a list of notable in person & online support group resources within our Shield Healthcare network. I hope you find the value in the village, as I did. Enjoy!

Arkansas

California

Colorado

Ohio

Illinois

Texas

Washington

Miscellaneous

 

Best in Health,

Aaron

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I have been paralyzed from the waist down since 2013. I’ve been steadily gaining weight since then, and I’m starting to get self-conscious about it, especially since people already stare at me in my wheelchair. What are some exercises, things I can do to help me lose this extra weight?
James
Hi James! I'm sorry to hear about your accident, but it sounds like you're motivated to be as strong as possible. Good man! I also had a lean body before my injury. In my experience, nutrition and physical activity are the most effective ways to manage my weight. I have learned that by eating...
 

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