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Special thanks to Iris K. for sharing this special story about caring for her granddaughter with Angelman Syndrome. I remember the moment when...
Join Together For Better Care On February 28th we recognize Rare Disease Day across the United States and around the world. In the United States, a rare disease is defined as a disease that affects less than 200,000 people. There are nearly 7,000 rare diseases and disorders in the U.S. Rare diseases affect approximately 30 million Americans,… Continue reading Recognizing Rare Disease Day
Shield HealthCare 12th Annual “What Makes Caregiving Rewarding?” Story Contest | Grand Prize Winner Spotlight Story by Mysti K., Caregiver for her daughter with Angelman Syndrome “It’s four a.m. and something awakens me from my sleep. I don’t hear anything, but I have this feeling that something is not right. I sleepily walk to each of my… Continue reading Caring For A Child With Angelman Syndrome: A Mother’s Story
